PART 5: 2ND SURGERY PART
Posted June 21st, 2013 by Michelle Ghiassi
PART 5: SECOND SURGERY NECESSITY
Both second opinions said a second
surgery was the best option for me. Radiation did not make sense at this time
because they have to be able to locate the tumor as well for radiation.
Radiation could take several years. It just was not optimal. My best chance at
recovery was this second surgery. This is the nutshell version without going
into all the reasons.
HEARING SURGERY FAILED THE FIRST TIME
In March of 2013, in one of the
second opinions, the specialist told us I was going to die almost 5 times.
It is like, you hear it, but you don’t. The tumor was not removed completely
and we should have come to him for the first surgery. This is not the surgeon
we are using.
This was the day before we were
having our friends come over the next day for a party for a new business that
Mark and I had been trying to start. I had been fooling myself into thinking I
was recovered or in denial, I don't know. That night I pretended we did
not hear this news. Cushing's had already taken so much from us.
Mark and I had come so far in
the hopes of recovery. This was the first time all of my friends had been
around me after surgery and were trying to show their support. Inside I
was crying because I knew this disease was not over. I couldn't bare to tell
them that night.
MEETING SECOND SURGEON FOR
SECOND SURGERY
THAT NEXT WEEK, I was online
with my Cushing’s support group and posted about what was happening. Very
shortly, I received a telephone call from one of my friends on there. This was
the middle of the day. She told who she went to for surgery in Santa Monica,
why to go, and what to do.
DRIVING ON MY OWN TO THE SPECIALIST
This friend made me get in my car and
take my file all the way to Santa Monica for the specialist to review that
day. Like I told you, Mark and I did not have enough knowledge on my
disease during the first process. These are the moments when you realize
how strong you really are or not. With her strength as a friend pushing me, I
did it. I think she was my angel sent because I had been so depressed after the
party and was at a loss.
She had me call her and tell her I
did it. I was blessed by her call. This is how we came to where we
are at with this surgeon. We liked him instantly and felt confident with
him. It is so important to trust and research.
Since then I have met two patients
who have recovered from this Center and have given me hope about recovery. I
wanted to share this because everyone is being supportive. I try to
remain positive and keep my eye on the goal! Recovery/Remission whatever you
want to call it.
FOUR MONTHS FIGHTING FOR SURGEON
I switched endocrinologists during
this time and he and all my other doctors were on board with going to this
specialist. I have already told the insurance battle so I do not have to
write about it again. YOU ALL KNOW WHERE THAT STANDS.
HEALTH PROBLEMS DURING FOUR MONTHS
I have endured being anemic, having
iv of iron, having a allergic reaction to the iron during the infusions. I have
been through muscle/nerve testing. I have had a colonoscopy and
endoscopy. And various other issues. The body can only take so
much. The day my anemia was bad I thought I was going to die I could not
breathe, walk right, focus. It was awful. Mark and I were scared. It is moments
like these which made us realize this surgery needed to happen no matter what.
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