PART 10: ONE MONTH POST OP

ONE MONTH AGO-CAN YOU BELIEVE IT

Posted July 27th, 2013 by Mark Ghiassi

CAN YOU BELIEVE SURGERY WAS ONE MONTH AGO

The last couple weeks have been really difficult.  I have not had enough energy to update everyone. Sitting here tonight I realized it had been exactly one month, I made it this far.

The last week I have not been able to walk well.  All of my bones and joints have been hurting. I can actually feel the bones on the bottom of my feet hurt. I was doing better when I last wrote and was walking around a lot more. Mark was pushing me in the wheelchair around the block. This week I have slept most of the day on and off and after standing for about five to ten minutes I am in pain. 

The doctors said I can compare recovery to being ran over by a car and withdrawing from drugs. I have not had either experience except from what I hear and see on tv and from people.lol. My muscles are so weak that once again, I can not lift anything more than ten pounds without getting fatigued. 

I managed to go out of the house to a family event last weekend. I over did it. I do believe this is recovery.

We go to the endocrinologist on Monday so I will know more about my cortisol level and will be able to update everyone.

DISABILITY UPDATE

Today, I received correspondence from Barbara Boxer's office. Remember I tried to get media attention and write various people for help. Well, the letter was a copy of correspondence sent on my behalf to Social Security Disability asking for an expedited review and for correspondence to got to Ms. Boxer's office. I was very surprised. Even if nothing comes of this, it is amazing to me that her office at least took the time too look into this matter for me. I will keep you posted.

As far as working, I tried to do a couple projects at home this week. Nothing hard. I over did it. My brain is very tired, I realize from this. Physically, the bones in my hands hurt even from using my phone and trying to type.

This disease is definitely not just about the surgery. It is about your entire body, mentally and physically recovering from the excess cortisol.

I have cried a lot the last week and have become really frustrated with the process because the reality hit me even more about the length of recovery. I spoke with my friend who has recovered and she got me through one of my worse days.

Thank you for all of your support. We got a couple of bills in and knowing that we have some financial support has really helped decrease my stress. 

Our friends got together and had a yard sale for us, and another friend is having a jewelry party and donating the proceeds, which has been nice. Another friend, helped clean our house and some have brought us dinner. This is so helpful. I am not able to bend or lift anything without pain.

Mark went back to work the last two days and I realized how much he was helping me. The last two days without him here have been difficult. Even having him bring me my pills, and even blow dry my hair. I am not looking forward to Mark not being here. But I will manage. 

That's all for now. Thank you