PART 4: RECOVERY OR NOT
DECEMBER 2012, three months later, after weaning off hydrocortisol, I kept telling Mark I don’t think they got it all. I was noticing I still had symptoms. My other doctor said no they got it all, you just need to loose weight now. He told me to go on less than 1000 calories a day. ONCE AGAIN, A COMMENT ABOUT BEING OVERWEIGHT. My primary has never discouraged me in this way, she even said you are doing the best you can I know that. I don’t want you to go so low in calories that it is unhealthy.
This is when we began dealing with symptoms, anemia, muscle weakness in upper and lower limbs, bone pain. So many again. So tiring again started logging everything , feeling like I was the one who was crazy, couldn’t tell if it was symptoms or recovery.
RADIATION V. SURGERY-CUSHING'S MAY BE BACK WHAT?
Finally after being off the cortisol, my testing started to come back showing signs of Cushing’s still. My doctor told us it was back, still insisting that it was tumor cells. We had another MRI of bad quality because the correct one was not ordered. My doctor told us surgery was not recommended and radiation was our option only.
THIS WAS NOT TRUE. After being involved in my online support groups for this disease I knew enough about radiation and surgery option to second guess this.
IN MARCH 2013, I then sought a second opinion again.
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