Update
Posted by Mark Ghiassi
Thank you everyone for responding. We are keeping this website up through December but I will be updating on my blog at: http://mdglessons.blogspot.com.
For those of you you would like to keep getting the updates, you submit your email to the blog and it will update you.
That way if someone wants to donate they can still do so by reading the update when they want too.
Update:
- We changed to PPO.
- I am going to get my next MRI set up with Dr. Kelly.
- Repeat labwork in middle of October.
- Physically, I am having good and bad days. Of course I am progressing, it's just really slow.
- Everything will cost a little more now because of PPO.
- I am working at least 5 to 10 hours a week from home at night but there are days when I literally can not sit at the computer because my muscles are so weak.
- Disability is not approved yet. I did receive a call from Department of Health in San Francisco; My letter that I wrote to Obama was sent to that department. The man I spoke with is going to look into funding for medicine or any other things that might help us. At least my letter went somewhere.
Like I said before, my energy really can be analogized to a car filled with gasoline and when I run out I am totally wiped out. This has been quite a struggle the last two weeks. Learning what my limitations are. When I am having a really good day I want to do everything. I had to take extra cortisol this last weekend because I overdid it and started to get nauseous and a headache, signs of adrenal insufficiency.
I will update you again. Please forward this website still to help us, thanks
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